With an eager smile, Josh opened the door to his dream bedroom for the first time.
Josh lives with a rare genetic, degenerative medical condition called Ataxia-Telangiectasia. The disease affects his nervous system and a number of different organs in his body, which causes him to use a power chair and a walker. His greatest dream was for a unique bedroom renovation with a McDonald’s twist to it!
With a family trip already planned to Disney, Make-A-Wish was given the opportunity to work on Joshua’s wish without him seeing any of the progress. An automatic door he can control by remote, hubcaps on the wall, aMcDonald’s drive-thru window, and a working train on the upper perimeter of the room made Josh’s dream come true. The renovations have given him independence and excitement.
Several business and community members volunteered their time and donated items to create the bedroom of Josh’s dreams. Just days after the reveal, Josh’s mom emailed Make-A-Wish to let us know what a success the room was. She wrote, “Josh said, ‘My favorite thing about my room is...’, he ended up listing just about everything! He REALLY loves being able to control so many things with his remotes, allowing him to do a few more things for himself again.”
Make-A-Wish would like to thank: Paul G White, Shaw Contract, Sherwin Williams, Scarborough, Designtex Surface Imaging, Lutron/CurtainShop, CF Stinson, 3 Form and Altec Plastics, inc., Exactitude/Precision Millwork, and Bob's Furniture. Partnerships with the Maine Interior Design Association (MIDA), Tom Munroe and his business, CAP Services of Cumberland, were critical to Josh's wish being granted. Make-A-Wish reached out to MIDA to see if anyone would be willing to assist with the project and two interior designers (Lynn Pepin, of Gawron Turgeon Architects in Scarborough and Rebecca Ames of CWS Architects in Portland) volunteered to take the lead on the project and saw it through to its completion.