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I wish to see Butterflies & Beaches

Emersyn wishes to fly with butterflies

“ We will be forever grateful. ”


- Emersyn's Mom

The doctors explained to us that A-T is comparable to having the same symptoms as cerebral palsy, cystic fibrosis, and muscular dystrophy in one disorder combined with a weaken immune system and high risk for cancer. At average, kids are in a wheelchair by ten and life expectancy is late teen to early 20’s.

Emersyn was diagnosed at the age of two and what a whirlwind it has been. She started first grade in the fall. With A-T being a progressive disorder, it has definitely marked this year, her seventh year of life, to be the hardest yet. Emersyn has lost once mastered skills such as skipping in a short matter of six months.

Emersyn and her brother Grady wait for their plainWith Emersyn’s quick progression in such a short period of time, we began thinking of things we could do with her; memories we could make for her while she was still mobile and, in our hearts, knew she would really enjoy. When I connected with Make-A-Wish, our next whirl wind started however this time it was a happy whirlwind: one that included lots of smiles and brought laughter. Not doctor visits, meetings, or medical equipment.

We spent a week in San Diego where we visited the San Diego Zoo, San Diego Safari Park, a Monarch housing facility and so much more. Emersyn got plenty of beach time, which was a perfect rest at just the right times.

Emersyn and her mom look at a butterflyMake-A-Wish did the kindest act for my family. No one has ever done anything so nice for us. They gave us the opportunity to step out of reality for a week and make positive, lasting memories that we will never forget. The joy that this brought Emersyn is the same joy we felt in our hearts to watch her in this experience. We are so glad we were able to do this while Emersyn was still independently mobile. We will be forever grateful.

Thank You,
Brittany, Emersyn’s Mom



With Emersyn’s quick progression in such a short period of time, we began thinking of things we could do with her; memories we could make for her while she was still mobile and, in our hearts, knew she would really enjoy. ”

— Emersyn's Mom

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5 Comments

June 25, 2012 - 11:25 AM

christine

Thank you for sharing your story. I am so humbled by your words and strength as a mother. I hipe Em wilk forever hold in her heart what it feels like to be free; to flitter and dance through blue skies. We live you all.

July 02, 2013 - 7:57 PM

Deborah Belinda

I'm so great full to the Make-A-Wish foundation , for fulfilling our Beautiful Grand-daughters wish to fly with the butterflies. Anyone who has had the privilege of knowing this darling young lady knows she certainly deserved this trip. What a wonderful time she had ! Thank You.

July 03, 2013 - 2:03 PM

Cindy-Lee

Thank you Make a wish Foundation for the wonderful things you do,Brittany is a wonderful Mom with a big heart,Emmy is a Beautiful little girl,Im so glad she had such a wonderful time as well as the Family!!! Love Grams!

July 08, 2013 - 12:59 AM

Angie (Auntie)

Make-A-Wish has done such a beautiful thing for such a beautiful little girl. I am very honored and proud to say that she is my niece and we absolutely love her so very much. My sister is one of the bravest and strongest women I know on this earth and I can't even put into words how much her strength has helped me even with this horrible disease. She is one amazing Momma!! Love you all! And thank you Make-A-Wish Foundation. :)

July 09, 2013 - 9:28 AM

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Every year, Make-A-Wish Maine uses an average of 9 million airline miles to send families on their wish trips. These miles are paid at full price and we do not receive discounts on luggage fees, in-flight meals, etc.

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