The doctors explained to us that A-T is comparable to having the same symptoms as cerebral palsy, cystic fibrosis, and muscular dystrophy in one disorder combined with a weaken immune system and high risk for cancer. At average, kids are in a wheelchair by ten and life expectancy is late teen to early 20’s.
Emersyn was diagnosed at the age of two and what a whirlwind it has been. She started first grade in the fall. With A-T being a progressive disorder, it has definitely marked this year, her seventh year of life, to be the hardest yet. Emersyn has lost once mastered skills such as skipping in a short matter of six months.
With Emersyn’s quick progression in such a short period of time, we began thinking of things we could do with her; memories we could make for her while she was still mobile and, in our hearts, knew she would really enjoy. When I connected with Make-A-Wish, our next whirl wind started however this time it was a happy whirlwind: one that included lots of smiles and brought laughter. Not doctor visits, meetings, or medical equipment.
We spent a week in San Diego where we visited the San Diego Zoo, San Diego Safari Park, a Monarch housing facility and so much more. Emersyn got plenty of beach time, which was a perfect rest at just the right times.
Make-A-Wish did the kindest act for my family. No one has ever done anything so nice for us. They gave us the opportunity to step out of reality for a week and make positive, lasting memories that we will never forget. The joy that this brought Emersyn is the same joy we felt in our hearts to watch her in this experience. We are so glad we were able to do this while Emersyn was still independently mobile. We will be forever grateful.
Brittany, Emersyn’s Mom